Batten Disease Awareness Day - Palace of Parliament will be illuminated in turquoise on Wednesday
Publicat:The Palace of the Parliament will be illuminated in turquoise on Wednesday, on the occasion of Batten Disease Awareness Day. In mid-May, the Permanent Bureau of the Chamber of Deputies approved a request to this effect from the Rebeca Faith-Hope-Love Association, submitted to the Committee on Health and Family, regarding the organization of an event this year to draw attention to the Batten disease, a rare neurodegenerative condition that affects children.
"Last year we had a beautiful collaboration and a successful event came out that was covered by TV and online media. (...) This year,…
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